KURI Ltd

This is going to be a very short post and my apologies if I'm not getting this right with the blog - it's not something I've done before this experience. I can honestly say that the last week has been one of the hardest of my life.  Ashleigh was good for the first two days after surgery and it blew me away just how well she could function after what had been done.  She was off all epilepsy medication from Thursday morning.  Apparently it is completely normal not to seize for a number of days after electrodes have been implanted. From early Saturday morning (about 2 am) Ashleigh started experiencing pain.  There were periods she was good but then the pain would come again.  She talked about it being an 8 on a scale from 1 - 10.  She started seizing on Monday night and had 5 in 24 hours.  After 2 they put her back on her epilepsy medications.  On Tuesday they came and did a stimulation test to see what part of her would be affected by removing the part of the brain wher

We arrived in Cleveland just before midnight on Friday 23rd February.  We had access to our permanent accommodation from Tuesday so had booked an apartment within walking distance of The Quicken Loans Arena as we planned on going to the Cleveland Cavaliers NBA game on Sunday together as a family prior to Ashleigh's admission on Monday.  We also went to Kid Rock on Saturday night (worthy of a blog all on it's own!).  Ashleigh didn't come - she needed some space after sharing a room with Joseph for a week, was tired and just needed time to herself understandably. The NBA game was an experience - there is always something going on for any breaks in the game.  Going to any event in America makes you realise how lucky we are in New Zealand.  There is full security including making you empty the bags, not touching anything themselves and top it off by going through metal detectors.  The Cav's lost and were a bit disappointing because they clearly dropped their head fo

Ashleigh saying goodbye to New Zealand. We left New Zealand at approximately 6:50 am on Saturday 17th February to head off on what is going to a life-changing experience for us all - no matter what the outcome of the investigations at The Cleveland Clinic may be.  At least at the end of all of this Ashleigh will no longer be in a holding pattern, waiting for the next test or possibility of help for this condition that is much more debilitating than anyone realises. So it is with excitement that we leave, even though we know there is the very real possibility of a brain resection (removal of tissue) in Ashleigh's near future.  We flew to Brisbane with a stop over for a few hours and then on to Los Angeles - arriving before we left New Zealand - just after 6 am on Saturday 17th February. In the States, check out of your hotel is later than at home so check in is later.  We picked up our rental car (another difference - you're not allocated your car but select it fr

KURI has a very special person to introduce to you all, Ashleigh. Sometimes you may speak to Ashleigh over the phone at the KURI call center, see her at our front desk, Ashleigh is also our assistant groomer! We are so proud of you Ashleigh, you are an absolute inspiration, tough as nails. Ashleigh has a story to tell and it begins here......... Ashleigh Bull is 18 years old.  She was diagnosed with epilepsy initially at 11 & 1/2 months old.  For much of Ashleigh's life her epilepsy has been kept manageable by medication with periods of time where medication needed to be adjusted to get to a point of functionality again and to reduce the impact on Ashleigh's quality of life.  However, Ashleigh's seizures have never been fully under control with her having  from 2 - 15 seizures every night and it has always been known that the seizures could increase in frequency and more significantly, severity.  The specialist had always warned us to expect an increase with

Here at KURI we have some super exciting adventures currently happening! We though the best way to keep up with our KURI adventures and News was to begin our very own blog! Im sure you will be familiar with our Facebook page  https://www.facebook.com/Kuri.co.nz/  and our website  http://www.kuri.co.nz/  , we will take things to the next level with Videos, Stories, and more information from KURI than you have ever seen before!  Geoff Bowers Founder/Director of KURI Ltd has been incredibly busy behind the scenes for the last 12 months, developing KURI's Eco Dog Team and Handlers https://www.tvnz.co.nz/one-news/new-zealand/canterbury-dogs-trained-sniff-chilean-needle-grass-in-world-first-v1 , not to mention the forming of the Perfect Partner Assistance Dog Angel and her owner Ashleigh. We cannot wait to share our stories and Videos with you all.